A collaborative approach is key to the widespread use of information standards
“As we grow and strengthen the voices of our members and partners in our work, one thing will remain constant: people will always be at the heart of our what we do. ” Lorraine Foley, CEO
Highlights and Achievements
Everything we produce and deliver at PRSB is entirely dependent on collaboration, consultation and shared communication. To do this, we strive to create effective working relationships with a diverse range of stakeholders, all of whom are important to our work.
The PRSB Standards Partnership Scheme
Within two short years, PRSB’s Standards Partnership Scheme is widely recognised. We have 60 partners from across health and social care suppliers, both large and small.
Launch of the SPS for care provider organisations
In early 2023, we launched an exciting new service to health and social care providers which is complementary to our PRSB’s Standards Partnership Scheme for suppliers.
In spring 2022, we launched the successful #CareAboutMe campaign to promote person-centred care and emphasise the importance of enabling people to share their preferences and needs with professionals.
This past year, we have welcomed 16 new member organisations to the PRSB and made significant inroads in the social care sector.
Launch of implementation toolkits
We've developed toolkits to help health and social care organisations and professionals implement standards.
PRSB Advisory Board discussions
Our Advisory Boards hosted range of discussions which have shaped strategy and approach both within the PRSB and our stakeholders.
New PRSB Board members
In the past year, we welcomed new Board members and said goodbye to those who helped us develop our organisation.
Media and parliamentary engagement
Over the past year, we had the pleasure to contribute to give evidence and view on issues around data and digitisation raised by the Government.
Raising our profile at key events in the sector
PRSB speakers were in great demand in 2022/23 and featured at leading UK-wide events aimed at the digital health and care community.
Published standards 2022/23
This year we have published more standards than ever – with a world class suite of personalised care standards that put the tools in the hands of professionals and people.
Social Prescribing Standard
Social prescribing supports people to improve their health and wellbeing by offering more personalised care based on an understanding of their needs and connecting them to local community, often voluntary, services which can provide help. The Social Prescribing Information Standard enables the sharing and recording of information for the whole patient journey, from initial referral, throughout the period of social prescribing and the message back to the referrer and GP at its conclusion. The standard has achieved an Information Standards Notice, which mandates its use, following rigorous quality assurance by the NHS Data Alliance Partnership Board.
"As a social prescriber, I know how difficult it is to capture everything discussed in a session in a consistent format that can be shared with colleagues from other care providers. I often find myself spending more time tracking information from previous sessions that could be spent working with an individual to help them meet their needs and goals. The standard help Link Workers like me to administer high-quality care and support the true value and impact of social prescribing."
Liverpool-based link worker, Sarah Moreton, professional lead for the project
111 Referral Standard
Across the UK, 111 services are becoming the first point of contact for urgent care and are essential in ensuring that people are referred to the most appropriate service safely and efficiently.
The PRSB has created a standard to support clear and concise information flows between the 111 referrer and the receiving services and professionals or clinicians to support safe and effective care.
This standard achieved an Information Standards Notice (ISN), making its use mandatory, as part of the BaRS ISN following assurance by the NHS England Data Alliance Partnership Board.
Shared Decision Making Standard
Shared decision making is fundamental to putting the person at the centre of their own care. It is a collaborative process where clinicians and individuals consider treatment options based on evidence about their potential benefits and harms, to enable the person to decide the best course for themselves.
The PRSB Shared Decision-Making Standard provides a framework for clinicians to record the decision-making process between themselves and their patients. The standard also allows the shared decision information to be shared between professionals and their different record systems.
Palliative and End of Life Care Information Standard
The needs of people of all ages who are at or near the end of life, their families, carers and communities, should be addressed, considering their priorities, preferences and wishes. Personalised care, as individuals near the end of life, will result in a better experience, tailored around what really matters to the person, and create more sustainable NHS services.
PRSB has updated the SCCI 1580 standard for palliative and end of life care coordination to ensure that professionals and individuals have access to appropriate information to support decision making for those with palliative care needs and those who are approaching the end of their lives.
Last year, PRSB carried out research with Compassion in Dying which showed that too often electronic end-of-life records don’t work as they should or simply aren’t used. The strongest message from the 1,700 people we spoke to, was that they experienced considerable anxiety that their end-of-life wishes and health information would not be known when it mattered. The widespread implementation of the Palliative and End of Life Care Information Standard will ensure that their needs and preferences are consistently recorded and listened.
We created an implementation toolkit to help frontline professionals and system suppliers implement the standard, which is available at PRSB link, and also available via NHS England and the Personalised Care Institute. https://www.personalisedcareinstitute.org.uk/resources-2/
“I firmly believe that the Palliative and End of Life Care Information Standard is a key enabler of integrated, joined up care, and implementing it will improve the experience of both individuals and health and care providers. It will give people nearing the last days of their lives peace of mind that their needs will be handled by health and care professionals who will be able to make informed decisions to meet those needs. We would all want that assurance for ourselves at life’s end, and so it is vital that we make this happen now for those for whom we care.“ – Dr Kath Lambert, Consultant in Palliative Medicine at Harrogate and District NHS Foundation Trust
Pharmacy, Optometry, Dentistry, Ambulance and Community Services Standard
In 2022, PRSB looked at ways to help accelerate the sharing of health and care information in five community care settings - Digital Community Pharmacy, Optometry, Dentistry, Ambulance, Community Care (PODAC).
PRSB explored the use of PRSB’s Core Information Standard for shared care records for this purpose, producing new standards where needed and assessing whether or not GP records could be used to speed up access to the right information.
“Endorsing the information standard for use across PODAC sectors marks a really important step on the journey to enabling true interoperability across the wider health and care system.”
James Palmer, Programme Head for Digital PODAC, NHS Digital
Provenance Data Standard
Implementing standards is PRSB’s key purpose, and to help health and care professionals and suppliers adopt them, we have produced an information model that describes who made the record entry or carried out the activity, where and when. This is known as provenance data.
The aim is to simplify the inclusion of provenance data in PRSB standards, making them shorter, easier to read, and use.
For system suppliers new to PRSB standards, implementing the provenance data standard is necessary when adopting any PRSB standards. However, for suppliers already using PRSB standards, no additional action is required as the data items in the provenance data standard were previously explicitly repeated in existing standards.
Health and social care professionals will continue recording details about professional activities as before. The PRSB is also providing expanded formats for viewing and using standards, including an online standards viewer, and downloadable JSON and Excel files, to facilitate mapping, testing, and application development.
Diabetes Information Standard
With an estimated 4.8 million individuals currently living with diabetes, a number projected to reach 5.3 million by 2025, the need for effective information sharing among health and care professionals and patients has become paramount.
PRSB, at the request of NHS England, developed two vital information standards to ensure seamless data flow between services and from medical devices to healthcare providers. The first standard, the Diabetes Information Record Standard, defines the necessary information for supporting diabetes management and encourages its exchange between care providers. The second standard, the Diabetes Self-Management Standard, focuses on information that can be recorded by individuals at home using digital apps or medical devices, promoting a collaborative approach to care.
The standards were developed following UK-wide consultation with a wide range of professionals, people and suppliers.
“As someone with diabetes, I know how difficult it is to make sure the information that is collected through apps and devices at home is properly sent to the health and care team, in a way they can read and interpret. With standards in place, the consultant can look at the data in real time, analyse it and recommend adjustments to improve how diabetes is controlled. I was delighted to work with PRSB to support these future changes. I am confident that when widely implemented, these standards will help support more people with diabetes like me.”
Ojaih Willow, Person-lead
PRSB is now working with NHS Digital on terminology, to specify how the information is coded, and technical standards (based on FHIR UK Core), to specify how information is to be held or moved between systems.
"As a UK-wide organisation, PRSB is committed to much greater inclusivity and relevance of our work across all nations. Our standards development routinely includes representatives from Wales, Scotland, England and Northern Ireland."
Prof. Maureen Baker, Chair of PRSB
“Looking ahead, our main aim is to get standards more widely used, finding new and creative ways to progress our members’ priorities, and engage professionals, suppliers, and the public to see the benefits of using standards.“
Lorraine Foley, CEO
Wound Care Standard
Millions of people require wound care every year, some for chronic wounds, others as part of surgery or other treatment. The quality and consistency of wound care is fundamental to people’s recovery and the National Wound Care Strategy Programme was launched in 2018 to improve wound care and reduce unacceptable variation in practice.
The PRSB was commissioned to develop an accompanying information standard supporting the prevention, assessment, management and treatment of chronic wounds in the NHS. The standard has been published and is being endorsed by PRSB members, before we seek an Information Standard Notice to mandate its use.
“The opportunity for improving wound care services lies in the adoption of best practice on a wide scale – and this is something that the PRSB’s Wound Care Information Standard will support. The collection and use of standardised, high quality clinical information will enable better assessment, management, maintenance, and prevention of wounds for clinicians, and will support system leaders to understand their wound care services.
“I was pleased to be involved in the development of the standard, and I look forward to seeing how it will contribute to better outcomes and will make a difference to millions of people suffering from wounds.”
Dr Una Adderley, Director at the National Wound Care Strategy Programme
Nursing Care Needs Standard
Today’s health and care is all about teamwork and as people increasingly access care from different services and different settings, sharing information digitally to keep everyone up to date is vital.
PRSB has undertaken early work to identify information needed to support a wider range of professionals, people, and settings. This year, we are building on that work by developing the Nursing Information Standard, which will aim to improve quality and safety of care in key nurse-led areas, including care planning.
It will reflect best practice and standardise documentation across different nursing settings, to free nurses and give them more time to provide care.
We are working with the NHS to help staff work more flexibly and reduce onboarding administration, enabling staff to move between provider locations swiftly and smoothly as their skills, qualifications, HR and other core checks are safely and securely shared and validated between organisations.
We have been commissioned to develop a workforce standard that ensures all employment information could be contained in a single, national Digital Staff Passport, universally accepted as trustworthy by employers, held securely on a person’s mobile phone, and kept up to date.
Community Pharmacy Standard
We have published the updated version of our Community Pharmacy Standard (v.3) to reflect changes to the Community Pharmacy Contractual Framework (CPCF) in England and the services it covers, along with other changes to make it ready for widespread implementation.
The standard will enable information on care and services provided by community pharmacists to be seamlessly transmitted back to the GP record, and to be available to the person and the wider NHS, ensuring safe, effective, and connected care. The standard has achieved ISN status, which mandates its use.
Financial statements and accounts
The PRSB financial statement for 2023
The Professional Record Standards Body
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